“How are you?” and other tough questions

Joe and I had a conversation about how others perceive my illness the other day. It wasn’t a confrontational conversation- it was more the random musings that happen when you’re waiting for dinner to come out of the oven. Joe mentioned that a mutual friend had once said to him (not an exact quote), “I understand Tiffany’s illness, and I think people believe she’s sick. It’s just hard for them to understand when they see her out and she’s smiling and bubbly.”

Hmm. Okay, I’m typically the great empathizer, so I can try to understand what others see. I can understand to a degree that it’s difficult for people to see a 30 something with a loud voice and ridiculous laugh- and reconcile that with the stories they’ve heard about me being ill. I suppose I can understand how it’s all confusing.

But, geez Louise, people! How on earth am I supposed to act? If I’m in public, I try to act like I belong in public. I don’t leave the house if there’s no chance of me staying conscious. When people ask how I’m doing, I say, “Fine” or “The best I can” and I smile. That seems normal, and that’s how I’ve chosen to handle my illness. If I know that I have an event to attend (even if it’s a seemingly ‘no big deal’ event like dinner with friends or an evening basketball game), I prepare the entire day beforehand, so I will seem “fine.” I rest more than normal. I don’t lift anything or do any exercise, so I can protect my joints. I eat foods that aren’t likely to make me sick. There’s a lot of work that goes into appearing “fine.”

The problem with so many people who live in my world of chronic illness is that we never fake being ill- but we’re masters at faking being well. It makes people uncomfortable if I’m honest about how I’m feeling. Think about it. If you say, “Hi, Tiffany. How are you today?” and I reply, “I feel horrible. I just popped in a dislocated elbow, and I’m really nauseous now” then the conversation is awkward for everyone. You suddenly feel like you have to offer me some sort of comfort (You don’t.). I feel awkward, because you’re pitying me. It’s just more difficulty than I want to add into running my errands or joining my husband at a football game.

An acquaintance recently asked if I’m “doing better now.” Well, that’s complicated. In that exact moment, I had been running errands for a bit. I was drenched in sweat and shaky. In that moment, the answer was “no.” In life in general, I have a chronic condition. There will always be good days and bad days. There will more than likely never be a time of being better or worse, because symptoms seem to come in unpredictable waves- the kind of waves that sweep you off your feet and make you eat sand and get salt in your eyes. However, the best response I could give this person- who had all the best intentions- was to say, “I’m trying my best to do better.” Cue the smiling and awkward giggling.

So, for the sake of everyone’s sanity, I’m going to keep giving oversimplified answers to difficult questions. Please, don’t misunderstand. I appreciate that people include me in small talk. I choose to keep my answers simple- even if they don’t accurately describe my current condition. I don’t feel like I’m lying- I’m shielding people from an uncomfortable truth. We all do it to an extent.

To the people who don’t feel like I act “sick enough,” I have no apologies. I’m doing my best to handle this life- same as you. I’m open to questions, because I understand that my reality is quite different from that of my peers. Let me share with you about my world. There are needs and concerns that exist for my chronic illness friends that others our age have never considered. I don’t expect those who don’t live this life to understand. I don’t fault anyone for not understanding either. I’m simply asking for the benefit of the doubt. Trust me, with this body, I’m bound to prove to you that I’m sick if you watch for a bit.

Peace, love, and health, friends.

Advertisements

11 thoughts on ““How are you?” and other tough questions

  1. April McDowell

    Yes. I understand. I often struggle with how to answer this question, too, and with the misperceptions you mention.

    Like

    Reply
  2. Christy Rotert

    I understand completely! It’s not easy living with chronic illness and all we have to go through. I don’t answer many questions about how I feel because I’ve found many people really don’t want to know the truth. And I’m like you…I try to be as happy with what God has given me…who wants to be down on top of everything else;)
    Keep fighting the good fight!!!

    Like

    Reply
  3. Suzanne Mann

    Honey pie, I feel your pain and know exactly what you are saying! Even my hubby after all these years asks me “Are you feeling better today?” I could just throttle him but then unless someone walks a mile in your shoes they have no idea. Gentle hugs to you!!

    Like

    Reply
  4. Prindle Hinton

    Thanks for sharing. This is something I stuggle with too…especially with my own parents. I don’t look ill to them so they have never once asked, since my diagnosis, how I’m doing. Really hard to deal with! I’ve also had a Rheumatologist tell me I wasn’t sick enough! It’s a relief to know there are others out there with the same struggles as I!

    Like

    Reply
  5. Pingback: "To Those Who Find My Illness 'Hard to Understand' When They See Me Smile"

  6. Peggy Marshall Prigge

    I feel like this topic is the bane of my existence! I sleep all weekend so I can drag my zombie carcass to work on Monday, and once there, panic and adrenaline kick in and power me until approximately Wednesday when I crash and burn, call off, sleep all day, then back work Thursday where again I use work anxiety to carry me through the rest the week until Friday , when I crash again until Sunday am! My friends do not understand
    Why I won’t (can’t) meet for Friday after drinks and/or refuse leave my house all weekend… I am so tired…and feel like garbage
    Most of the time. I know I need to quit my full time job, but finances, health insurance (to pay my medical and medication bills), and fear of financial dependence has me clinging too for now, but I can’t hold much longer! It gets harder every week, and I hate fact I have no life! Thanks for showing us life, humor and hope in our chronic illness worlds! I too spend a lot of my non work time prone on my couch watching Netflix! My favorite program right now is “Person of Interest.”

    Like

    Reply
    1. tiffanyrearly Post author

      Thanks so much for reading and commenting! I can never decide if I’m sad that someone else lives a life like mine or relieved that I’m not as alone as it seems sometimes. Haha.

      Like

      Reply

Leave a Reply. Seriously, it'll make me happy!

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s